Monday, August 6, 2012

Nora's Crocodile Rockers, 2012, JDRF Walk To Cure Diabetes

Dear Family, Friends, Loved Ones, and Colleagues,

I am asking for your help. I ain't askin nobody for nothin, if I can't get it on my own.  So goes the song, but I can't get this on my own. I hope you can offer some kind of financial support to bolster the great research happening today which is bringing a cure for diabetes a bit closer. For those who are interested to know more, please read on. I have tried to help someone on the outside of the problem appreciate a bit of the reality of life with diabetes.

Nine years ago our family experienced a profound transformation. We became a family with a type 1 diabetic child. Our first child, Eleanor, was diagnosed with type 1 diabetes while she was still only two. Each day since then, each hour, has included some chore, task, reference, thought, or responsibility demanded of us by diabetes. Please do not think of this as an exaggeration, because if I err, it will be in making the demands less pressing than what they are.

And so we live. We focus on life with as much positive energy as we can. Nora does an excellent job of accepting her circumstances on most days. The rest of us do as well. Blood sugar checks number into the multi-thousands that have been endured so far. Daily shots have given way to the self enclosed delivery device called an OmniPod. This device still has to be monitored, though, and changed no less than every three days. This involves having a spring loaded needle inject the delivery line under the skin. It hurts. The insulin that we have put into the pod then gets gradually delivered into the blood as programming suggests. Who programs it? We do. The programming is based on experience and ever-changing needs of the user. Nothing is automatic; not really.

And so we plan. After nine years we are getting pretty proficient with our knowledge of food and its various carbohydrate counts. Nora gives herself more insulin, called a bolus, whenever she eats. This is based on the carbohydrates in the food. Again, formulas are used, but life is inexact. We still practice a refined form of guess work when needed. When the birthday parties, sleepovers, field trips, celebration dinners, etc. arise, we try our best to plan for it, or at least react well to what is being offered. Nora is growing and changing, and her insulin demands continue to change accordingly. She has completed a kids’ triathlon, and she wants to do more, proving that her limits are still far on the horizon.She has chosen to play cello now in the school orchestra, so her fingers, the parts she uses for checking BG, will endure more stress.

And we educate. Nora is another year older, and we all are slightly wiser. Still we find ourselves dealing frequently with misconceptions and ignorance about diabetes. Since Nora’s pod is sometimes visible she gets asked about it. She explains the situation quite well, but I wonder when she might get sick of saying it all. Well meaning people, both family and friends alike, still make comments that amaze me. Recently we were asked again if it is OK for Nora to have chocolate. I have heard someone telling another that she is not allowed to eat sugar. Others persist in these outdated assumptions that come from times when diabetes was not understood well, and its management tools were severely limited. I was happy to help my friend, Lizmari Collazo, again this year in promoting the Diabetes Ice Cream Social, just to combat some of those outdated ideas.

And we hope. Our lives are woven with the demands of type 1 diabetes. But the reason we ask for help and support is because we hope for a day when we can let go of that part of life. We hope to leave behind our diabetic lifestyle one day soon. Please help us to reach that important goal.

We are walking again this year on October 6th at Military Park, Indianapolis. The Walk for a Cure is a great day to bring together hundreds of people in one place to support JDRF and its efforts fund research. If you wish to donate, you can do so online by following the links I have listed below. You may also write a check payable to JDRF. Any size of donation is useful and appreciated, and all are tax deductible.

Please visit my walk fundraising page at the following link. This will allow you to make an online donation if you should choose to do so. Of course, it would be very exciting and helpful if you would want to join our walk team. Information is also at this link:

We are hoping to do well for Nora’s team this year.  Thanks for your time in reading this. You are part of the cure.

Andy Blythe,
Nora’s Crocodile Rockers, 2012

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