Dear Family, Friends, Loved Ones, and Colleagues,
am asking for your help. I ain't askin nobody for nothin, if I can't get it on my own. So goes the song, but I can't get this on my own. I hope you can offer some kind of financial
support to bolster the great research happening today which is bringing a
cure for diabetes a bit closer. For those who are interested to know
more, please read on. I have tried to help someone on the outside of
the problem appreciate a bit of the reality of life with diabetes.
years ago our family experienced a profound transformation. We became a
family with a type 1 diabetic child. Our first child, Eleanor, was
diagnosed with type 1 diabetes while she was still only two. Each day
since then, each hour, has included some chore, task, reference,
thought, or responsibility demanded of us by diabetes. Please do not
think of this as an exaggeration, because if I err, it will be in making
the demands less pressing than what they are.
we live. We focus on life with as much positive energy as we can. Nora
does an excellent job of accepting her circumstances on most days. The
rest of us do as well. Blood sugar checks number into the
multi-thousands that have been endured so far. Daily shots have given
way to the self enclosed delivery device called an OmniPod. This device
still has to be monitored, though, and changed no less than every three
days. This involves having a spring loaded needle inject the delivery
line under the skin. It hurts. The insulin that we have put into the
pod then gets gradually delivered into the blood as programming
suggests. Who programs it? We do. The programming is based on
experience and ever-changing needs of the user. Nothing is automatic;
And so we plan. After nine years we are
getting pretty proficient with our knowledge of food and its various
carbohydrate counts. Nora gives herself more insulin, called a bolus,
whenever she eats. This is based on the carbohydrates in the food.
Again, formulas are used, but life is inexact. We still practice a
refined form of guess work when needed. When the birthday parties,
sleepovers, field trips, celebration dinners, etc. arise, we try our
best to plan for it, or at least react well to what is being offered.
Nora is growing and changing, and her insulin demands continue to change
accordingly. She has completed a kids’ triathlon, and she wants to do
more, proving that her limits are still far on the horizon.She has
chosen to play cello now in the school orchestra, so her fingers, the
parts she uses for checking BG, will endure more stress.
And we educate. Nora is another year older, and we all are
slightly wiser. Still we find ourselves dealing frequently with
misconceptions and ignorance about diabetes. Since Nora’s pod is
sometimes visible she gets asked about it. She explains the situation
quite well, but I wonder when she might get sick of saying it all. Well
meaning people, both family and friends alike, still make comments that
amaze me. Recently we were asked again if it is OK for Nora to have
chocolate. I have heard someone telling another that she is not allowed
to eat sugar. Others persist in these outdated assumptions that come
from times when diabetes was not understood well, and its management
tools were severely limited. I was happy to help my friend, Lizmari Collazo, again this year in promoting the Diabetes Ice Cream Social, just to combat some of those outdated ideas.
And we hope. Our lives
are woven with the demands of type 1 diabetes. But the reason we ask
for help and support is because we hope for a day when we can let go of
that part of life. We hope to leave behind our diabetic lifestyle one
day soon. Please help us to reach that important goal.
are walking again this year on October 6th at Military Park,
Indianapolis. The Walk for a Cure is a great day to bring together
hundreds of people in one place to support JDRF and its efforts fund
research. If you wish to donate, you can do so online by following the
links I have listed below. You may also write a check payable to JDRF.
Any size of donation is useful and appreciated, and all are tax
Please visit my walk fundraising page at
the following link. This will allow you to make an online donation if
you should choose to do so. Of course, it would be very exciting and
helpful if you would want to join our walk team. Information is also at
We are hoping to do well for Nora’s team this year. Thanks for your time in reading this. You are part of the cure.
Nora’s Crocodile Rockers, 2012